Another 48 Hours

Yesterday we had a chat with the team and they want to monitor Hudson for another 48 hours. I was with him last night and he did well. He slept through the night except when he was hungry at 3am. His sats were between 70 and low 80’s with the occasional dip into the high 60’s and reaching the low 90’s. I’m beginning to hate this sat monitor. 😀 While it was kind of cool in the beginning, at the same time it’s annoying to be fixated on it too much. I have stared at my son long enough that I can do a half decent assessment of him by looking at him. Even with his sats jumping around… he looks fine! Really only need to be concerned when he’s really upset and i see the blueness a little more.

The tentative plan is to discharge him on Thursday. When they do rounds in this morning, I’m not inclined to mention every little weird observation that lasted a couple seconds. When he’s perfectly still and resting… the sensors can get a proper reading…. and his readings are fine. We can take that as his baseline .

I haven’t noticed any arrhythmia’s overnight. It’s another one of those things I am fixated on watching… his heart monitor (telemetry) on the screen for long periods of time. It seems the increase in medication is doing it’s job.

So for now, its looking like Hudson is telling us he will tough it out (with drugs, so it’s a different tough-it-out :D) the next 6 weeks or so. During rounds this morning, I will ask what it means for his tricuspid valve and if there is any risk to it worsening before his Glenn and the answer I probably expect is something like, ‘it’s possible, but we don’t expect it to be’. Don’t get me wrong, I love all the staff here… They are THE best… It’s just hard not being able to get any definitive answers at times… We’ll all just nod our head and say the famous one-liner, “It all just depends on him”. After the Glenn, it’s possible the relieved pressure in his heart will allow his valve to recover as he grows.

Hopefully there will be more info today! Thanks for Reading… One day Hudson will read all this, probably won’t know any different and say, ‘whats the big deal, dad? I’m here’ I love you my boy…

–Chris