Hudson has been moved from ICU (PICU) to the ward (3M Unit) this morning. They want to monitor him for a few more days and have been communicating with the team in Edmonton on next steps. There are two things that are of concern:
1 – His oxygen saturation drops below 60% sometimes. Should be mid-70’s
2 – His tricuspid valve (the one between the right atrium and ventricle) is moderately leaky/regurgitating.
They need to decide:
1 – Does he need another cath to put a stent in his right pulmonary artery? We would have to go to Edmonton for this. However, Edmonton doesn’t prefer doing stents. The good news is Hudson’s sats are high 70’s the past little while
2 – Do they do the Glenn (2nd operation) early?
Pros:
Relieve some pressure in his heart and especially on his tricuspid valve.
They can fix the narrowing in his pulmonary artery and don’t need a stent.
Cons:
His veins coming from his head are not “mature” enough. They would like them to grow more before operating. Doing it early would most likely result in another cath at a later date and we would like to avoid this.
His lungs could do with developing a couple months more since the pressure will offload his heart, but now move towards his lungs.
Not doing the Glenn now, MAY put his tricuspid valve at risk. This most likely cannot be repaired and result in needing a heart transplant. They may be able to control his heart function with higher dose drugs which is what they are monitoring for the next few days.
Will most likely not address the arrhythmia issue. The reason why we showed up at Children’s in the first place.
Well, Gabby has spent the last 2 nights at BC Children’s. I will be heading in soon to trade places. She will come home, pick up the other 2 kids for the night. She’ll drop them off tomorrow at inlaws and friends and then come into Children’s where I’ll then go to work. At the end of the day, she’ll go home and repeat…. until a decision is made
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