Today is one week exactly since we left Edmonton and I am sitting here at BC Children’s Hospital watching my little angel sleep, he is so cute I just want to lie beside him and cuddle all day. He looks so peaceful and super adorable. Sometimes he opens half of one eye to see if I am still here I think and then closes it HE! HE I love it.
He continues to thrive and is up on his feeds, he gained a fair amount of weight today so the Dr’s are happy with the progress of feedings and have ordered to speed up his bolus feeds, so now instead of feeding 60ml over 2hrs, it’s 60ml over 1.5hrs and he gets to be breastfeed in between. They have thickened up his feeds, added some SLF (Similac Lactose-Free) to the breastmilk he is getting through the NG tube. He has had two episodes of spitting up and that’s important in his case because most of these kids have bad gag reflex and spit everything up. I mean so far it’s only been twice since he’s been feeding for over a week now, so that’s not bad. I think it’s his meds that are making him nauseas specially the sedative (Ativan) but he should be off that one by the end of today YEAY!! One less drug, so happy when they take something out. He could also be spitting up because of the SLF.. He hasn’t spit up anything until he started getting this stuff.
–Gabby
Leave a Reply